Musings of a Marfan Mom

A Life Update

| 10 Comments

I know my blogging has been lackluster lately. I’m hoping to have some quality time to write this coming week. Here’s what we’ve had going on:

1) Job interviews. Did you know we’re trying to move? We are! Back to Ohio! This wasn’t our plan originally, but over the past few months we felt this is what was right for our family right now. Mark is off on some interviews and we’re hoping he gets an offer soon because…

2) We want to buy a house there. Thing is, we’ve only got 2 days after Thanksgiving to look at properties if we want to have the chance of having a home to move right into. Otherwise, we’ll move into my grandmother’s apartment (she’ll be out of the country) and keep looking. I really don’t want to do that though, as that means I’ll have to move the boys’ services around again once we move into a house, and we all know how vital routine is for kids with autism. So, this means I’ve been researching real estate agents and looking over homes we might want to tour so that we’re ready to start scheduling as soon as Mark gets an offer (being optimistic that he will!). Anyone have advice for choosing an agent or buying a house? How long did it take to schedule house tours?

3) It’s almost time for M’s last IFSP meeting. He’s in the midst of testing for that right now, and his IEP testing is scheduled for a few weeks from now. Our goal is to have his IEP in place before we move, for the smoothest transition possible.

4) Some doctor visits have slowed down a bit. We’re still working on J being able to tolerate the CPAP mask at night. I think we’re getting close though. We’ve only got about 5 weeks before his next pulmonology appointment, so please cross your fingers that this works soon! Otherwise, we’ll need to look into surgical options. J finally transitioned from his bassinet to a pack ‘n play today. I can’t wait till we’re in a house and he can have his own room, so he can use the crib. J’s reflux isn’t getting any better though, even though the GI greatly increased his medication. He’s probably going to need further testing and I should be hearing back from the doctor about that today.

I’ll leave you with this picture of M and me: he’d asked me to put his hair up in rubber bands so I did two little pigtails.

What’s new and exciting for you?

Be Sociable, Share!

10 Comments

  1. Hey – good luck with the move planning!!! I happen to work for the movers association so when you are ready to look for a moving company, be sure to check out http://www.moving.org so you can be sure you get a professional and responsible mover — always ask for a ProMover! :)

    My littliest one also has reflux – we just started on Zantac but I am thinking we need to go for a visit to the GI doc — its just not getting better!

    [Reply]

    marfmom Reply:

    Thanks, we’ll definitely check them out! As to the reflux, one thing I learned from going to the GI doc was that our pediatrician was giving J a dose of medication that was far under the max dose for his size. She told me it was the max dose though, which makes me wonder if there is a different maximum for pediatricians and specialists. The GI nearly quadrupled his dose. Another option is to ask for prevacid. One of my friends said zantac didn’t work for her child but prevacid made a difference. I’m not sure if J’s doc is going to bother trying out the other medication at this point, due to his diagnosis and the fact we know he has a hernia, which might be causing or aggravating the reflux. I have a feeling an upper GI test is in his future.

    [Reply]

  2. Don’t where in Ohio you’re aiming to move but I have a wonderful realtor in Columbus – Larry Stewart (http://connectionrealtors.ohio.remax.com/agent/default.aspx). Good luck with the job and house hunt!

    [Reply]

  3. Good luck! Don’t stress too much about house hunting…most places can be seen with 24 hours notice.

    Looking forward to having you back in the Midwest!

    [Reply]

    marfmom Reply:

    Oh that’s good to know! Thought we might need a week or more.

    [Reply]

  4. Hey, Maya! That’s awesome that you’re looking to move back to Ohio! I miss it. My dad is a Realtor with Coldwell Banker in the Columbus area. I can tell you from experience he spends a ton of time working to make his clients happy. :) Also, he’s told me before that young first-time buyers are his favorite people to work with!

    [Reply]

  5. It’s definitely possible to buy a house long-distance, so long as you have a realtor can do some legwork and you’re willing to accept a house that might not be your dream house. We moved to Nashville after graduating from college (I was in band with you and Mark, not sure if you’d remember me though) and bought a house after a day and a half of looking. I spoke with our realtors over the phone and told them our parameters (max price, number of bedrooms, distance from work) and they came up with a list of houses to see. We toured houses one afternoon and the following morning, made an offer the second afternoon, and signed the papers the next morning. The realtor took care of things like being present for the inspection. Access to a fax machine will help things go faster for things like loan paperwork. Also, you might not get as good of a deal; we negotiated very little on the price of our house because we knew it would be harder to take care of if the negotiations extended after we went back home.

    [Reply]

    marfmom Reply:

    Thanks! That’s really helpful! And what instrument did you play? :-)

    [Reply]

  6. Euphonium. I was the only girl in the section the 4 years I was in SW.

    [Reply]

    marfmom Reply:

    Yep! I remember you!

    [Reply]

Leave a Reply

Required fields are marked *.