Musings of a Marfan Mom

A Life Update

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I know my blogging has been lackluster lately. I’m hoping to have some quality time to write this coming week. Here’s what we’ve had going on:

1) Job interviews. Did you know we’re trying to move? We are! Back to Ohio! This wasn’t our plan originally, but over the past few months we felt this is what was right for our family right now. Mark is off on some interviews and we’re hoping he gets an offer soon because…

2) We want to buy a house there. Thing is, we’ve only got 2 days after Thanksgiving to look at properties if we want to have the chance of having a home to move right into. Otherwise, we’ll move into my grandmother’s apartment (she’ll be out of the country) and keep looking. I really don’t want to do that though, as that means I’ll have to move the boys’ services around again once we move into a house, and we all know how vital routine is for kids with autism. So, this means I’ve been researching real estate agents and looking over homes we might want to tour so that we’re ready to start scheduling as soon as Mark gets an offer (being optimistic that he will!). Anyone have advice for choosing an agent or buying a house? How long did it take to schedule house tours?

3) It’s almost time for M’s last IFSP meeting. He’s in the midst of testing for that right now, and his IEP testing is scheduled for a few weeks from now. Our goal is to have his IEP in place before we move, for the smoothest transition possible.

4) Some doctor visits have slowed down a bit. We’re still working on J being able to tolerate the CPAP mask at night. I think we’re getting close though. We’ve only got about 5 weeks before his next pulmonology appointment, so please cross your fingers that this works soon! Otherwise, we’ll need to look into surgical options. J finally transitioned from his bassinet to a pack ‘n play today. I can’t wait till we’re in a house and he can have his own room, so he can use the crib. J’s reflux isn’t getting any better though, even though the GI greatly increased his medication. He’s probably going to need further testing and I should be hearing back from the doctor about that today.

I’ll leave you with this picture of M and me: he’d asked me to put his hair up in rubber bands so I did two little pigtails.

What’s new and exciting for you?

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