Musings of a Marfan Mom

2009 in Review

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It’s been a busy year in our household! Here are a few of the highlights:

January: I had just graduated from graduate school and was enjoying doing nothing but being pregnant. About halfway through the month I learned my delivery plans were going to change pretty drastically. My grandfather passed away after a long battle with cancer; his funeral happened while I prepped for my c-section.

February: At the beginning of the month we welcomed Menininho. It was a complicated post-delivery, one that I hope to never repeat. We moved to California and I made my first silly new mom mistake.

March: I learned of the losses of two Marfan friends. Menininho was blessed and formally given a name. Our family came to visit. Mark was diagnosed with Type 1 diabetes.

April: A pretty boring month, but I did blog about some of my baby “must haves”.

May: We started using cloth diapers and won’t go back! Mark officially graduated with his MS. I also had the stress test that started a chain of events.

June: Mark and I celebrated our 2nd wedding anniversary. I also started a series of posts about my life with Marfan.

July: My Life With Marfan posts continued and I prepared for the annual National Marfan Foundation conference.

August: Menininho and I flew solo to visit my mom and sister. I finished up the Marfan series and went to my 4th conference, where besides working with the teens I was also one of the closing speakers.

September: My cardiologist discovered a problem with my heart and I decided to wean Menininho early in order to start a new medication. A few weeks later Mark was diagnosed with Celiac disease.

October: We had a mishap at the pumpkin patch, and then better success. I moved my blog from Blogger to WordPress.

November: I relived some childhood memories with MamaKat’s Writers’ Workshop and we got to spend Thanksgiving in Ohio, seeing all of my and Mark’s extended families.

December: The inner breastfeeding advocate in me wrote a post about a woman’s right to breastfeed and the inner patient advocate in me wrote a post about being an empowered patient. We bought a tree, spent too much time in the ER and had a failed Christmas tradition.

I want to thank all of you who read my blog, who give me feedback. I am humbled that you take time from your day to read what I have to write. I look forward to getting to know more of you and your writings in 2010!

~ Maya

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6 Comments

  1. Sounds like your year really had some ups and downs especially for all of you health wise. Hopefully this year is better for you guys in the health department!

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  2. Maya,
    I really enjoyed reading your entries and getting to know you, Mark, and your baby boy much better.
    Your Marfan history and information and support group is incredible. I had no idea and I really learned a lot.
    My fiance has type 1 diabetes for about 13yrs now. I just got diagnosed with thyroid disease called Grave’s.

    I think you are an amazing mom and advocate for breastfeeding. I cried too when my baby girl weaned.

    What a YEAR you’ve had! Thank you for recapping and letting me catch up.

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  3. Wow, what a year! What triumphs, challenges, celebrations, and heartbreaks. I hope the New Year brings you and your family much happiness, good health, and only joyful surprises.

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  4. Maya – this is a great post. I really enjoyed the summary and also catching a few posts I’d missed early in the year. I hope you don’t mind my copying your format and doing a “year in review” of my own.
    BTW, when will you know whether the medication you had to wean M for is working? Girlie weaned on her own at almost seven months and I had mixed feelings – relief because pumping at work had been very challenging, and sadness that such an intensely close bond would no longer exist with her and I would not likely have the opportunity for such a bond again. I wish you a year of health, peace and joy.

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  5. What a year you’ve had! Thank you for sharing and I look forward to following more of your journey.

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