Musings of a Marfan Mom



My in-laws came to visit for about a week. Here’s a quick recap of all the fun things we did. We…

…went to the park.

…walked along the beach.

…sang and danced.

…hung around.

Yep. That's my husband. In his church clothes.

…played car games.

And, just spent time together as a family.

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  1. Thanks for stopping by and checking out my blog! It looks like y’all had a fun day and I love the hanging around in church clothes.


  2. that looks like such a fun time! thanks for stopping by


  3. greetings from cork name is Helen lee and my daughter laura has Marfans syndrome,she was diagnoised after it was discovered that she had a detached lense at the age of three, she has dialated arotic root and is on beta blockers.she is a lovely girl and does get sick of everyone saying!!arent you tall. i havent come across one other child here in cork or in ireland with marfans,so i was excited to find your page on there a page for teens with marfans ,she is at the age now where she is wondering about marfans and living with it. looking forward to hearing from you.helen lee.


  4. Great pictures – It is obvious Menininho loves his uncles.


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